Yes I am left to fight off, control full body paralysis or cramping and contortions from dystonia every day since October and after being dumped in my bed still mostly paralyzed from dystonia on December 24, 2010, with no proper medications, of course not hospitalized and fighting for my life... I thought I wouldn't live through severe ME/CFS, I did. Keeping on going with the extensive muscle and ligament damage of January 2003 (I think was neuroleptic maligant syndrome), Lead Pipe Dystonia February 2003, February 2003 similar to January 2003 not nears as severe, March2003 acute dystonic reaction involving all of my body mostly the trunk as well as seizures and left with myocolnus movement disorder after, left on drugs doing physical and brain damage for the rest of the year to 2004 including imovane at high doses a doctor knew I was still being given by another doctor and interfered with every other drug I was prescribed and still doing damage and didn't say a word, as well as other medications mixed together by GP from hell that never should have been, and given medications you don't give to someone with dystonia which can cause and make it worse, which they did). I survived, hardly blinked an eye on the first major muscle and ligament damage. Its when the abuse verbal and physical started in the hosptials March 2003 after repeated refusals for the doctors involved to hosptialize me, the intended terrororizing started having the effect they wanted and continued involving 6 hosptials, some repeatedly in Toronto, several times life threatening, as well as abuse in my own home by PSW's from the local CCAC who covered for the abusers, the doctors and the hospitals.
The dystonia although I had it generalized since 2003 and didn't know until June 2004 as I had been told both the muscle ligament damage and the dystonia were tardive dyskensia by the GP from hell, although I suspected earlier including myoclonic dystonia and used "dystonia" to describe the two often confusing people and several specialists although several I said both myolconic dystonia and dystonia and was left to paralyze from the waist down since February 2004, low blood volume POTS/NMH making it worse, which was used against me, left day in day out to paralyze in my bed here, at home. I won't go into details now how I escaped that for several years and what I used.....I will at some point .... after I used natural alternatives to create dopamine and bring down my CNS system, and bring up my low blood volume, didn't stop it but kept the paralysing minimal, the full body movement disorder continued every day, on every part of the floor not covered by furniture for years.
The paralyzing full body is horrific, and constant battle every day to try to keep it under control without proper medications, medical care, and lets not forget I have extensive muscle and ligament damage first throughout my body still not on medical records or care or treatment - nothing, nadda ..........
I started a new feed for this blog, pubicappeal for cheryl, and started a new more simple one called savingcheryl, that I may switch the feeds or start a new one, although the set up is what I wanted on my website for some years, putting in page sorter for me that works with the wordpress theme seems so far beyond his capabilities ....... they are beyond mine, I can barely keep myself alive, that's why I hired a webmaster ........
testing the feed ....... it's been a horrific night and day, I started having full body paralysis 3am, yesterday I woke up paralyzed, it's been a few weeks, near a month maybe, that I have only had constant breakthroughs of paralysis, not waking up to and a constant battle every day. I don't know if I will make it through this .... we all die.... I had no idea that dystonia could kill you or paralyze all of you ..... it was left to worsend and clumps kept arising and started linking together through my body ...... on top of the muscle and ligament damage, on top of the severe ME/CFS, and fibro .....oh yes I have hep c.
it's heart breaking and maddening to read the medical records, the falsification is HEAVY, the human error horrendous, of course no abuse is mentioned. Pain in overload ...... I was so hoping I could be showered today ...... well I got my clothes changed all by myself, a rarity ............ usually has to be done for me or be helped, tried for 2 times a week if I was up to it ..... now it's weeks. with that said it has been over a month prior, even with private homecare - she didn't care and I was too bad off and my shoulders too damaged to even raise my arms to put on a t-shirt from being left to convulse every day
well correcting hospital records still escapes me, I been trying 1 hospital since December 2010, guess we now which that is ...... i too bad off, can't type, can't focus, can't sit up.... or I just want to say the truth, which I can't I will get more of a backlash, as if they haven't done enough damage already, they can say what the hell they want on your records ...... but you ..... well I been abused enough by this SOB's, 6 hospitals, physical and or verbal for staying alive and keeping my ground and refusing their psychiatric bullshit labels to cover for extensive damage from psychiatric drugs....... I so want to speak my mind ....... I am fed up with the intimidation, abuse and corersion
signed: trying to stay alive -> where is everyone to help me
in major pain for days _> thinking the paralysis may be the end of me, and I am not ready to go yet
