Homecare Support -Housing Application CFS/FM only No Brain/Body Damage Or Support Care Housing

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SUPPORT SERVICES/SPECIAL NEEDS
Main Contact: CHERYL BENSON App No.
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SUPPORT SERVICES
Member Name Reason for Support Services
BENSON, CHERYL Disabled - Attendant Care
BENSON, CHERYL DEPRESSION, CHRONIC FATIGUE SYNDROME/FIBROMYALGIA AND HAS HOMEMAKER COME IN AND C.O.T.A. PROG: LOWW LEVEL OF FUNCTIONING IS PERMANENT. W/C PART-TIME
SPECIAL NEEDS
Member Name Reason for Special Needs
BENSON, CHERYL Physically Disabled
BENSON, CHERYL Physically Disabled - Wheelchair
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I was supposed to get supportive care wheelchair accessable housing, I found out it's possibly  not supportive care, Dr. Saul frauded the letter not putting any physical damage - housing told me to get a lawyer - and the doctor seeing me in-home that was involved refused to do an application in 2004 citing the psychical damage , dystonia, seizures, as "faking it" "episodes" "psychological" "10% in my brain the rest psychological". Although many others did to try to get me bumped up on the top of the list i. On another form, for revenue canada Dr. Saul says only CFS/FM, on another form dystonia and need 2-8 hours day supportive care, on another dyskensia. Every form has been frauded by the doctors involved.

I was just there to change some information for housing, I have been on the list for 10 years now. I am livid, the damage is not on there, and is extensive, movement disorders, dystonia on medical records back to 2003, every muscle ligament in my body is damaged, my left side drags around on and off, I can barely lift anything only very light things, change my clothes, bath myself, lift or move hardly anything and mostly bed confined. The extensive damage is no where to be found except the one letter Dr. Saul did, when I was going for malpractice just before I came off the remaining drugs that were doing more damage and all hell broke loose and some mention on COTA workers letters. They have affected my life and well being, and all medical and government records on every level. My ME/CFS, FM, MCS, EBV, was severe enough I didn't think I would live through that.


That the government allows this is clearly apparent how much doctors and hosptials are above the rule of law here.


I also don't have homemaker supplied by government paid for by our taxes. The access center was severely discriminatory regarding ME/CFS/FM and HepC, they were clearly in the dark and wished to remain so. They claim and everyone they hired that they were totally unaware of how physically damaged I was, and eventually  as I continued to worsen.

The EYACenter was involved in the collusion after I was brain damaged with one of the hosptials, several doctors involved. In 2004 when I was cut off doctors and any medications and left here, and COTA workers. I had been left to seizure, cramp, paralyzes the later from dystonia day after day, into months into years, some I manged to get under control without the proper medications, I was left purposely incapacitated, as at the end of 2003-2004 I had started (1) an investigation into the Access Center - by the wrong people, - the Ministry of health who they come under, it's like asking the police to investigate and charge each others (2) I had started malpractice and negligence and had gotten a certificate, although I had to be financed - I had asked 3 doctors and 4 hospitals for help by end of 2003, and only got abuse, before I even considered malpractice and negligence. Everyone makes mistakes, deliberately helping someone after they have been so horrifically damaged physically, repeatedly and instead refusing to hospitalize then and abuse instigated in hospitals so it was clear not to call 911 or more. Home-care were not doing their job and often abusing me, left in my own mess in bed, bed pan put in closet top shelves where I couldn't reach them, theft and more. The Access Center once again covered for the homecare instead of taking responsibility for my care  quote "stop bad mouthing the homecare". 


In 2004 they were forced to change to a prior agency VHA, I had my original services from for improved homecare and reporting, however my falsified records were forwarded, it seems to everyone, and when reporting they never appreciated any caregiver being reported that wasn't doing their job properly. In 2005 after being abused and threatened by yet another caregiver who was caught going through my medical records, I had been paralized in bed from dystonia,  I shut off services temporarily. In turn, the EYACenter shut them off permanently.

Since 2005 my mother has been keeping me alive and failing herself, and ever prior had to do most of their job, which she was not up to and has paid dearly for physically and taken years off her life.

I was shocked to read the records late 2008 finally, how much information they were keeping on me without written consent by me, they signed the consent forms when the non-privacy laws came into effect, which is fraud. Barely one page is correct through over 100 pages and more of information recorded, also the incompetency, discrimination, stupidity, meanness, and collusion. It is hard to tell when one is not the other, they overlap so much.

During 1996 to about 2000, I was allowed homcare 2 hours a week because of my ME/CFS, FM, HepC, MCS, I also have EBV. My ME/CFS has always been severe. This was for doing housework, cleaning, dishes, laundry, and a COTA worker supposedly to help me with my cognitive problems, pacing myself so I wouldn't 'crash' as much, that's ending in bed for days weeks or months from going to the corner store, walking to fast for short distance, any activity, and also with household management. The COTA worker did none.

I was told I was cut off homecare services around 2000, because of lack of funding by the Ministry of Health. I did get them back in 2003 when I was brain damaged the first time, they show clearly that none of them or the people they hired knew how damaged I was, how could they not.


When I got the East York Access Center reports that took me from 2003 - 2006 to get, which was illegal on their part, and barely one page is correct. It states I was let go in 2000 because "client doesn't require hands on care". My homecare worker, who was one of if not the greatest I had and was from India and near 65 years old, often offered to help change my clothes or to give me a bath as she saw I was unable to for days, weeks at a time, sometimes, several months when I had a severe set back. They never knew. They never cared. In fact it got worse after the first brain damage and is another chapter to be written somewhere else. The closing of my files with the East York Accedes Center and the Toronto General Hospital was April 2006, saying I was still being followed by psychiatry there and was a main hospital involved in the collusion - I had left psychatry in March 2003, after the last bipolar round with tegretol cocktail caused acute dystonia with seizures and full body movement disorders that never went away - the nurse brought in house said "was a weird kind of dyskenisa" put down on the records as" muscles spasms and purposely control movement"

About Dysarthria 2

More information on dysarthria

What is dysarthria? - Dysarthria is an acquired neurological disorder of speech caused by damage to cranial nerves or the frontal lobe (motor cortex).

What causes dysarthria? - Dysarthria is caused by poor control of the speech muscles. In adults, dysarthria is can be caused by stroke, degenerative disease.

What're the symptoms of dysarthria? - A person with dysarthria may experience many symptoms, depending on the extent and location of damage to the nervous system.

What's the treatment for dysarthria? - Different treatment options may be explored according to the type and severity of the dysarthria.

http://neurology.health-cares.net/dysarthria-treatment.php

Talking with Intermittent Dysarthia

Study Shows Fibromyalgia Is a “Real Disease,” Related to Brain Dysfunction

Study Shows Fibromyalgia Is a “Real Disease,” Related to Brain Dysfunction

According to a new brain scan study, fibromyalgia may be related to a dysfunction of cerebral pain-processing.
Pain researchers in Marseilles, France, used single photon emission computed tomography, also called SPECT, in an attempt to detect functional abnormalities in certain regions of the brains of patients with fibromyalgia. This technology allows precise measurements of blood flows in different regions of the brain and offers an image of electrical activity.

There is no known cause or accepted cure for fibromyalgia, a painful syndrome in which the patients describe chronic and severe pain in muscles, ligaments and tendons. Pain in the neck and shoulders is common but sufferers also report problems with sleep, anxiety and depression.
More of 90 percent of fibromalgya sufferers are women. Fibromalgya has been called the “invisible syndrome” because it can’t be diagnosed based on a lab test or X-ray.

The researchers looked at 20 women diagnosed with fibromalgya and 10 healthy women. Participants were given brain scans and they answered questions to asses measures of pain, disability, anxiety and depression. In women with fibromalgya, researchers found an increase in blood flow in the parts of the brain responsible for sensing pain and a decrease in an area involved in emotional responses to pain.

The results confirmed that patients with fibromalgya have “a real disease/disorder” and suggest this disorder “may be related to a global dysfunction of the cerebral pain-processing.”
The research found no relationship between these abnormalities in cerebral blood flow and presence of depression or anxiety.

Dec 2008, Shows left side dragging, some dystonia, dyskenisa, short clip- Update

Can't see how stiff all muscles liagements are, I have others that do, getting them videos mostly me doing, is very hard, so is editing them, so is watching them after. Especially the ones showing how I left, and condition I am in, rare can be bathed, need help changing clothes.

waking up to the dystonia every morning is a nightmare, my arms sockets are badly damaged, as the ligaments around them more than the others because of the convulsions every day ongoing, knowing they could and still can do something to at least bring them down, maybe even stop them, and help with the extensive damage, I been refused since 2003, 2004 I came off the drugs doing damage, and purposely isloated to cover, abused in every hosptial after the first brain damage, made clear not to call 911 anymore. One induced convulsions, prior my heart had stopped at home, I was on a heart monitor in the hosptial ER, they induced seizures and convulsions, the next morning while I was sleeping, they turned down the saline, I have low blood volume and I was still going through major withdrawls, I woke up seizing and the convulsions non-stop I went unconcious, I recall someone pushing on my chest. They had me sign release papers for the other hosptials involved before they would turn the saline back up to unparalize me, thats right I paralize. One drug on for 12 years they were covering for, (as well as the extensive damage) because a doctor left me on for another year knowing it was possibly doing more damage, he thought so, never said a thing. It did. I was wheelcharied up to him for 3 months, not on the records any where, support care said they didn't know, how could they not. We tried 4 more attempts in 2005 t have me hosptialized including the Minister of Health (former) Smitherman, he was to do an investigation in 2004 and he derailed that asso.

we were, stonewalled everywhere, the damage put as pyschatric or non existant. Mom tried again early 2008, they backed out after finding out how much damage and left here convulsing every day.

My mom did her first one last week of me, , I have to find it edit it, adn upload.I have lots now, many are long and very hard for me to edit and put in slide titles, what I really need is someone to come in and document me for several days, I mean stay here and guel it out.

The typing for the website is hard so is the Petition overview ans who to target, already written everyone, try again with public behind I pray. I have been told if I say anything I won't get help, they do the same thing. The abuse done should be exposed not hidden. Typing is hard for me and focusing, sitting up, do inbetween convulsions, dystonia, parkinsonium, my muscles and ligaments have to be relaxed enough to type, often I type the way my brain chops off words, the way I often speak, sometimes I can not speak at all now and is happening more and more. My mom cries when it happens. I often cry from the dystonia and the pain, my fibromyalgia and my shoulder sockets are so damaged, I couldn't lay on them for a long time, until I used more alternative healing methods.

Don't forget I have major illnesses years the ME/CFS and FM 1991, also Hep C, I didn't think I would live with those, the ME/CFS that is, also the FM has been severe.

I am almost like palative state now, for fuctioning..

FIRST DO NO HARM - 45 Minute CBC Documentary - Shows how Canadian Medical Professions are Above the Rule of Law

FIRST, DO NO HARMWatch the entire documentary online (runs appox 41:30)

MORE: The StoryThe Interviews Resources

THE STORY
In March, 2004 the Ontario College of Physicians and Surgeons of Ontario announced that it was revoking the license of Dr. Errol Wai-Ping, a gynecologist accused of mistreating, misdiagnosing and castrating dozens of women who were his patients.

DEFINITION OF AN ADVERSE EVENT

An adverse event is an unintended injury or complication that results in disability at the time of discharge, death or prolonged hospital stay and that is caused by health care management rather than by the patient's underlying disease process
.
This announcement signaled the end of one of Canada's most serious and longest running cases of medical error. It came on the heels of the Canadian Adverse Events Study which revealed one in thirteen Canadians is harmed by the medical care that is supposed to help them.
The fifth estate's documentary First, Do No Harm examines the story of Dr. Wai-Ping, the cases of some of his patients, and investigates the official process that allowed Dr. Wai-Ping to continue practicing almost a decade after complaints had first been made about his competence as a surgeon.

"Clearly this wasn't a good doc having a bad day. This was a pattern of conduct that frightened me because knowing what I know, the little I know about infection, I wonder what could possibly happen to somebody else that didn't know." - Nicole Harder

One of those patients is Nicole Harder of Cobourg, Ontario. In 1995, when Nicole was 31, she complained to both the Ajax-Pickering hospital and the College of Physicians and Surgeons of Ontario about Dr. Wai-Ping, claiming that he performed an unnecessary hysterectomy and causing a potentially life-threatening infection.

For seven years, Nicole Harder fought the Ontario College of Physicians and Surgeons and the hospital where he worked to reveal what, if any, measures were being taken to investigate her complaint or discipline Dr. Wai-Ping. She learned that the College referred her complaint to a confidential committee called Quality Assurance. Although the proceedings of this committee are kept secret, Harder obtained documents that showed the QA committee determined there were "significant" breaches in Dr. Wai-Ping's standard of care. For that, he was ordered to take a remedial communications course. Eventually Harder settled a malpractice suit against Dr. Wai-Ping.

In the past serious complaints about a doctor's clinical care usually went to a disciplinary board, which has the power to take a doctor's license away. In most provinces disciplinary hearings are open to the public.

FIRST, DO NO HARM

It is a widely held misconception that "First, Do No Harm" comes from the Hippocratic Oath. Although the oath expresses a similar sentiment it does not contain those words.In fact, Hippocrates came closest to issuing this directive in his treatise Epidemics, in an axiom that reads, "As to diseases, make a habit of two things -- to help, or at least, to do no harm."
The fifth estate's investigation reveals that across Canada there is a new trend to retrain doctors, not blame them. In Ontario it's called Quality Assurance. The disturbing thing is, everything that happens in Quality Assurance is secret. The College received at least 12 complaints about Dr. Wai-Ping between 1994 and 2001. In all of that time he had a spotless record so far as any patients could find out and there were no restrictions on his surgery.

Dr. Wai-Ping continued to perform surgery until a Toronto Star investigation made the matter public in 2001. Weeks later, the College finally referred the case to the Disciplinary Committee and Dr. Wai-Ping was forced to resign.

More than 300 of Dr. Wai-Ping's patients are now launching a class action lawsuit against the doctor, the College of Physicians and Surgeons and Rouge Valley Ajax-Pickering Hospital.

Read the College of Physicians and Surgeons of Ontario discipline hearing on Dr. Wai-Ping

What it is like to survive with severe ME/CFS, FM, HepC and some personal accounts, alternative therapies

The Sleepydust ME/CFS video was made for the friends and family of ME/CFS sufferers [i.e. sufferers of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Post Viral Fatigue Syndrome.]

While I hope to be doing my video's on these own sooner rather than later, I am typing petitions, video's of my current state which is really hard to see for me, I cry after some times (when you see me doing better I am often on the aminio acids and other products, but they back fire I can't stay on them long, and don't have enough or proper medications to stop the dysotnia, dyskensia), so is editing, petition/site overviews, etc. as able, in between ongoing dystonia convulsions every day I wake up to, to you they would look like some kind of seizure but not quite, I can usually talk through them, some times I can not talk at all my mom cries when it happenes, this during a conversation, the seizures I can not speak, that is different, the other is from brain damage, they say there is none!.

My ME/CFS and FM has always been severe, the ME/CFS the worst (different from HepC, some similarities, my liver was fine when I was diagnosed with ME/FM), I had a few improvements, one from kutapression shots imported from the USA, they don't make anymore. The improvement was short lived, you had to stay on them. Also once the pyschatric drugging started, I started deterioating rapidly much faster. I didn't think I would survive the ME/CFS, I also have FM, Fibromyalgia, and Hep C. I also quickly found out that if you couldn't keep up you got left behind and forgotten. People 'get/understand/ cancer, very easily, even MS (which used to be attributed to hysteria), but ME/CFS long ways to go, government funding and research can make a difference and is just really starting in the past few years including the ever so slow CDC. Gulf War Syndrome is related in many ways as well, many get ill from environmental factors and tramuas, not post viral as mine was, actually I had the environmental as well, I had extensive exposure to pesticides prior and especially after. I may not have worsened so much because of the pesticides, and the near endless list of antidepressants.

I have found similar products, not injectable like the kutapression shots, Dr. Cheney buys him out all the time, http://www.lloydwright.org, and his http://www.hepatitiscfree.com/, freedome from HepC, site is quite extensive. Some of the products work on ME/CFS, oddly enough they are made in Canada but can't find them here. Also D-Ribose, Reduced Glutathione, Immuvior, Omega 3and 6, NAC, Vitamin/Mineral supplements, amino acids, pain medications (not tylenol kills your liver, I used to take bottles of it for the pain)

I didn't think I would survive all the damage from the psychatric drugs. Know that they were not forced on me, I was not in an institution. I admitted myself once going sucidal on them, the amount of times I had drug induced severe suidcidal idealation, some very servere, I had years of it on the. The list of drugs I was given is lengthy and the adverse reactions, I am still listing them. I was never given proper informed consent on any of them, or medical release forms or others involved.

There is so much discrimination regardin this. I just favored a video on youtube, they may have a test out soon. I am a 17 year survivor of ME/CFS and FM. And now a psychatric survivor still fighting for my rights to honest neurlogical and medical care from all the damage from their drugs, most antidepressants, not all though. Unfortunately I need medications to control the dystonia and dyskensia, or bring it down and pain, my immune therapy back, I need doctors to sign my forms, (they came in the other day, my disability forms, so far they are all frauded by doctors since the repeated brain/body damage) also the rest of the damage is severe, every muscle and liagement in my body is damaged, the left side drags around, my speech as shown in prior video here, the dyskensia has spread through my body, I still have seizures. I can barely sit up. For a long time I was left in bed with or without diapers.

I also belongs to a subgroup of ME/CFS Survivors that are dose sensitive or intolerant to antidepressants as well as other medications. The WHO (Myalgic Encephalomyelitis is defined by the World Health Organisation as a neurological illness (code WHO-ICD-10-G93.3 ) and several countries, such as Canada recognize ME/CFS as a neurological illness/disease (although many doctors and neurologists still refute this still. In Europe, the government of Norway and Catalonia (Spain) have come to the same conclusion and they are starting biomedical centres to treat the patients. No psychiatrist is involved in these centres

There are several really good sites for ME/CFS, I am a member of the
http://www.mefmaction.net/Patients/tabid/82/Default.aspx, PDF's are posted on site already, there is alot more information there, one of the best, as well as www.prohealth.com, formerally www.immunesupport.com, all the latest clincial journals are published there regarding ME/CFS, FM, and related.

back to typing and editing for petition and over view, I can't seem to shorten them enough. I also can not type unless my muscles and ligaments are sofenend enough, able to sit up, mind clear enough (rare), and no dysotnia convulsions, and dyskensia relaxed, also rare and enough energy. same goes with being bathed, not very often left like this, it gets demoralizing.

There are other vidoes on site here showing the dyskensia, a short one of the myocolonic dysotnia, speech problems (dysarthria) i have more but they are hard to convert and edit for me and to get them on video, mine can go none stop nearly, and for 4 days after Christmas did just about that. There is a search box at the top of the blog.

onward