I am a Canadian citizen as were my great-grandparents on my mother’s side before me. I got an upper respiratory flu spring 1990 and developed Fibromyalgia and Multiple chemical Sensitivities. The Fibromyalgia was diagnosed by Rheumatologist in 1990. March 16, 1991, I had severe upper respiratory flu with partial paralysis, my ex (husband to be at the time) got it 4-5 days later, on the floor partially paralysed and crying from pain, after saying "it can't be that bad".
I was diagnosed with Myalgic Encephalomyelitis about August 1991 after going through a battery of tests including, viruses, CD counts, my liver by nuclear testing, which was clear of disease by an Infectious Disease Specialist who diagnosed or saw over 400 patients since the Lake Tahoe Breakout. I was given printed information on Myalgic encephalomyelitis from him back to the 1930's. Chronic Fatigue Syndrome was put on my medical records thanks to the CDC I suspect.
By 1993 I listed 40 ME/CFS and FM symptoms to my GP and had to stop working in 1994 on Long Term Disability from the Ontario Provincial Government after trying different hours, short term disability, the effort just made me sicker. I became mostly house and bed confined with fluctuations. Exertion (trying to do household chores, take of myself, walk, laundry, groceries etc) caused all my symptoms to worsen for days, weeks, or months after. The neurological difficulties, and CNS over stimilated were huge problems for me also, as well as pain, hyper insomnia or sleeping mostly for days.
In 1994 I tested positive for Hepatitis C, and was diagnosed with ME/CFS again by another Infectious Disease Specialist while in the Kutapressin Trials which gave me some of my life back. Far from well enough to return to work, even regular part time, my energy was up and I wasn't replasping (called a crash back then - I had never heard of PEM or PENE) nearly as quickly.
In 1996 I was referred to a psychiatrist for neurological problems inherent with ME/CFS, sensory overload, Central Nervous System (CNS), severe insomnia, some depression related to severe PMS cycle that started after ME/CFS and 3 prior adverse reactions to antidepressants, 2 that landed me in ER. The sensory overload was at first focused on with some success, however it got pushed aside.
Over a 8 year period, psychiatric drugging started without 'informed consent" (not told what the side effects/adverse reactions of the drugs, not even told what many of the drugs were), for a neurological illness, at doses far beyond what I could handle, most I did not need, if nutrition and natural alternatives had been tried instead. I went into the black hole of Major Depression caused by the drugs, I had never experienced before in my life.
I belong to a subgroup of ME/CFS survivors that are antidepressant and drug dose sensitive or intolerant, depending on the individual and varies. This is found in Clinical Medical Journals back to 1993.
After years of serious adverse reactions and over 50 psychotropic drugs, many given repeatedly, different doses, different band names, given different groups of drugs I was a mess and had deteriorated starting the first year and continued to. Not one medication was I given informed consent on.
In 2003 I was misdiagnosed yet again, bipolar, and an real absurd misdiagnosis, although both were at almost 50 years old, D.I.D. = Dissociative Identity Disorder, it doesn't mean dissociation caused from psychotropic drugs and unethical psychiatric practices, it means Multiple Personalities, 2 or more in one body taking over with loss of time. I had no alters, and no loss of time. 50 psychotropic drugs and 10 years later, my child hood nick names I used for Inner Child Journal Work since 1992 got put down as alters, much due to a Social Worker and some kind of dissociative, psychosis from years of high doses of psychiatric medications. The diagnosis was not put down as a serious misdiagnosis (absurd misdiagnosis - no offense
