This is dystonia cramping in my face, and shows in my hand and arm here, as in some videos I have uploaded it shows in both, it is called limb dystonia, I have it in my legs as well, both of them from the knees down. So far nothing has stayed permanent, for many it does. I have realized that it started in the late 1990's now, during the first 4 years of psychiatric drugging and one antidepressant after another, and adverse side effect one after the other, as well as a long list of other drugs thrown in, not told what many were, and never the damage they do.
I have been working on the list of drugs given and looking them up, what many of them were, I was slipped a lot of neuroleptics I was told they were pills for sleep to improve my REM stage for my severe insomnia from my ME/CFS and FM. Fortunately, I couldn't tolerate them for more than a few days, I felt ill and really weird in the head, my thinking, I can't explain it. However, there was one that didn't bother me that way, Nozinan, and I see prescriptions for it for a long time. It is a very long list, I have only started on the adverse reactions that came with them.
I have video's still to edit of the full body muscle spasms and rapid jerking. Since I have been able to sit up again for increasingly longer periods of time that started with 5 - 10 minutes and building up, for almost a month, and in the living-room with my legs up on the coffee table so blood flow doesn't drop to the bottom of my legs and I can sit up longer, the laptop on my lap, I have been, when I can speak, on the phone with Apple Tech for over 3 weeks trying to get their applications (iPhoto, iMovie) and time capsule, sorted out that collapsed and still not finished. I had to rebuild the iPhoto manually, imagine that, you can't in my condition. And there are still imports I had to delete I have to restore now with videos and pictures on them. Of course this is all in and out of bed as able throughout the day if not totally bed ridden and 'crashed'. My old PC laptop is in bed with me still and I find it very frustrating that I got a Mac, it sure was bad timing. I should have gotten a new PC laptop, they are so much easier. And what's on there doesn't work on here.
The constant movement and muscle contractions of dystonia can be compared to working out approximately 18 hours a day if you don't have them under control — and for people whose symptoms don't stop during sleep, 24 hours a day. This definitely results in more severe fatigue and diminished stamina. Fatigue may be confused with lack of energy or motivation which may be a sign of depression or other medical conditions, the same with ME/CFS and FM, although depression often comes with all of these.
Stress is not the cause of dystonia, but it can make it worse. Adequate rest and supplementing sleep (if you can get it and are not in hyper-insomnia OR hyper sleep mode with ME/CFS/FM) with restorative practices such as meditation or relaxation techniques are a mainstay of coping with illness as with life, keeping your sanity, and taking mental breaks from your body, the reality around you, and into the expansion of the universe of your soul if you can quiet your mind enough to make it there.
So if you don't get the movements under control, your body is, well it's not exactly exercising, it is very distressing, full body spasms, rapid jerks slow or fast every day when or shortly after you wake up, often during the night as well, it's another form of generalized dystonia and for me, movement makes it worse as well. Then there is the spasmodic dystonia, for most parts of your body there is another name for it, until it has affected almost all of your body then it segmental or generalized (all or almost all of your body - see links on right hand side to dystoia sites), that has spread through my body causing muscle groups to cramp and contract often in opposite directions and go as hard as a rock, often paralyzing me back wards as it is in my spine.
The picture is a lump that built up (and goes down, as with other areas that cramp) on my spine where it gives out, and was giving out a lot a few months back, as was my neck (this started January 2004 with a GP in my home who said nothing and knew I had dystonia), and I would just land on what ever was in front on me or beside me which ever way I went. I started being able to direct my landing, after smashing into the Mac several times and smashing it, and my face into the coffee table, my knees buckling, my whole left side the weak side what a nightmare. Then my muscles and ligaments would go rigid and paralyze and I couldn't move. My caregiver couldn't move me either for a bit, we had to use beer, which we do only when it gets so severe as I have been left with nothing else to uncramp it. She finally got me up by holding her hand across my forehead, and one arm around my chest and heaved me backwards in a sitting up position on the couch, although it took several tries and a beer.
I have lumps of dystonia across the back of my hips causing them to lock often and cutting off more blood and oxygen to my lower half and sometimes paralyzing, the increase in size the long full body movement disorders and/or seizures are out of control. As I have low blood volume from my ME/CFS and POTS , this makes it worse. In the hospital's were the abuse occurred and saying it was all psychiatric to keep me out of the hospital and the extensive muscle and ligament damage off the records and me from suing, when family tried to force them to hospitalize me and I was in ICU, they said the paralyzing was from low blood volume and oxygen levels, not one doctor knows about the dystonia on my back hips, nor have they cared. The paralyzing used to be almost daily for quite some time, and was severe for several years after coming off years of prescribed medication, 12 years in 2 months which was negligence. I had already been repeatedly brain and body damaged minimum 3 times the prior year in 2003, only to be damaged more coming off.
I still paralyze, not as often from the waist down, it has spread up my spine, so I am often paralyzed backwards while convulsing at the same time. I don't know if you can picture that in your mind, a video in the near future will help you to see it.
I was left convulsing until I paralyzed with a bucket and female urinal by my bed, if I could reach it.
The water jugs are kept beside my bed that I can barely lift the ligaments under my arms are so damaged, as well as the weakness of th damage to all the muscles, and from my ME/CFS and FM. I have my audio books and head set, reading has been difficult for me sine I got ME/CFS/FM, especially books. The internet seems to help becaue of the light on the screen I think.. For a long time, I ate, urinated, sometimes defecated, and tried to brush my teeth all in
this little space beside my bed. 
I haven't had a heart attack yet, although my medical records say I may have had a small one some time back , and I may have had a stroke January 2004 right side of brain, when the left side of my body paralyzed and then collapsed, which remains damaged and drags around on and off. The medical records keep changing regarding "small right infarct" (stroke, ambulsim) of brain .
Oh let's not forget I have HepC, positive blood test in 1993/94. I think from surgery I had and lost a lot of blood, or my room mate who had it, we discovered after the autopsy after he died and bled to death in my arms in a moving car. He had been my best friend, I had known him since I was 16 and lived together as roommates 3 times. Oh yes, they say you can't have ME/CFS if you have HepC. I will tell you that is not true. My liver tests and scans were fine and clear of chronic disease in 1991 when I went through a battery of tests to be diagnosed with ME/CFS after the flu from hell in March 1991, and , I was diagnosed with FM the same year although it had started the year prior. Some of the doctors involved changed the history of my HepC on my medical records as well as well as my ME/CFS, of course, ME/CFS didn't exist in their minds, they had no idea what it was or to survive with it. It certainly would if they had it.
Oddly enough, the dystonia is on the records, so far that I have found in the ER records, who every he was he knew right away, the movement disorders on the records after the Acute dystonia of March 2003, that kept coming out again every time I came off Celexa, although I have now tracked them back to 2002 possibly 2001. The spasmodic dystonia as well, in the ER records of January 2004 ( at the Toronto East General Hospital). The GP who was seeing me in my home, covering for the other doctors and hospitals involved, she told me it was "psychological" including the paralyzing when I started coming off the drugs too fast, same with the left side of my body dragging around, and the possible stroke right side of brain. My mom was very scared, I had already been so damaged, and said my life was in danger, so did several other people. The GP seeing me in my home never said the word 'dystonia', but has it written all through her falsified records, who left me seizing, convulsing and paralyzing for months, day after day. Why cover for dystonia? Why cover for the seizures? The GP in my home told me that my extensive muscle and ligament damage "was in the past, it's over with" refusing full body MRI or any tests for muscle ligament damage, to keep it off the records. Of course her records say otherwise. If one was revealed, then the extensive muscle and ligament damage would be too. Then I would be treated for it, and I would have been able to continue my with my malpractice and negligence suite. Wow, the compensation I would have gotten for the amount of damage done and premeditated much of it as well. She has written in her records, the GP, that I was on drugs for dystonia, not by her, by my ME/CFS doctor. Sure enough 2 of them did work on dystonia and movement disorders, but I was told for seizures, so was she.
I was cut off doctors and medications in the fall of 2004 saying all the damage ,
seizures and movement disorders were psychiatric, and to keep me out of the hospitals and me from suing. Taking a high risk chance of me having a heart attack or stroke
(I may have already had one), and more damage or death. ME/CFS survivors are at high risk for heart attacks and stroke and a leading cause of death, so are suicides. That's premeditated, any one elsewould be in jail.
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My spirit must be strong because through all of this, I AM, still here.
