1991 Prozac Hearings, Adverse Drug Reactions, Violence, Suidices - My Personal Experience

May 30, 1991:
"Prozac (fluoxetine) has had the highest number of adverse event reports submitted to the FDA National Adverse Drug Reaction Reporting System database. The database dates back to 1969."
Alan Gelberg, Acting Chief, Surveillance and Data Processing Branch, Center for Drug Evaluation and Research (CDER).

My Personal Introduction to Antidepressants, SSRI'S, Adverse Drug Reactions and Psychatrists

IN 1991 I was diagnosed by Infectious Disease Specialists with Chronic faituge Syndrome (CFS) better diagnosed years later as Myalgic Enceplopmetities (ME) In 1993 I had an adverse reaction to Doxepin, the first antidepressant I as ever put on for sleep, starting at 5mg, did not help so raised to 10mg. In several days my thinking greatly hampered and having trouble making sense communicating.

1993, put on PROZAC at 20mg (SSRI) for severe PMS that had gone extreme after getting ME/CFS and my central nervous system and sensory overload so over regulated, hormones made all my symptoms worse. I had been on short term disability from work and returned early rather wired on the stuff but still suffering my from my ME/CFS. The anxiety extreme on it and it didn't help the PMS symptoms, the anxiety from it was severe, I was also having panic attacks which I didn't have prior, I was in bed for several months my body trying to get used to it, it made my ME/CFS symptoms worse until the dose built up. It did give me more energy and cleared some of the cognitive problems from the ME/CFS and FM, I could read a book more easily and retain it. . One day fairly early at at work, my head hit my desk, not hard, I had to lay it down, it landed fairly hard though, it felt like something had fired off in my brain. Pulling it back up a minutes later, tears streaming do n my face, I could not stop crying, my speech affected. I didn't know hat as happening. Employers called 911, an ambulance came and took me to St. Michael's hospital, someone from work went with me to St. Micheal's Hospital. I was confused, disoriented, in a very mild form of shock. The ER doctor said he had never heard of anything like it before, or problems with PROZAC,. (note: te Prozac hearings were in 1991, documentation back to 1969). I had difficulty knowing left from right, literally. I was given Xanax and told to go home. It took 4 days before I could return to work with my employer harrassing me on the phone when I was to return.

In 1994, I was diagnosed by a Infectious disease Specialist again with ME/CFS. She prescribed LUVOX at 50mg to 100mg/day to help bring down my over regulated Central Nervous System (CNS) and sensory overload. It wasn't long before I got some kind of psychosis one evening. I didn't hallucinate, I knew where I was. My state of mind was greatly heightened and I sat in front of the full length bedroom mirror all through the night with an empty gun in my hand pointed at the right temple of my head. I sat there and clicked the trigger of the gun over and over again all through the night into the daylight hours. There no bullets in the home for the gun. I couldn't even figure out how to get it open or where the safety latch was on it, it wasn't mine, and at this point was curious how it worked. My brain was so messed up I could not even open it.

Later in the morning, again felt like something in my brain went off, just like the PROZAC, in the living room, and a mug or cup was in my hand and went flying through the window pane. I had been thinking hours earlier to go to a gun shop and buy bullets fo the gun. Instead I went to ER myself, at the Wellesley hospital where the Specialist was, she wasn't in. I was put in a very small room and left there, no questions asked by ER staff. Well over an hour passed, I asked for help again at the desk, and pretty much was ignored and returned to the small room. I was quite ill with the ME/CFS and FM, and had to get home to bed. I left. I called my mother on the way home, she said I sounded very 'wired'. Looking back I would say I may have gone hypo-manic, not quite I experienced drug induced hypo-mania years later from SSRI's. I got home and discontinued the drug. I tried to see her several more times, the first she was too busy and I could not sit up any longer, I was too ill from my ME/CFS/FM, I had to get home to bed. The 2nd time, was a phone call, she had left for China.

Shortly after I told a friend what happened, I said "I actually sat in front of a mirror for hours during the night with an empty gun pointed at my head, and pulled the trigger over and over for hours. Her repy was 'that is what happens when you have mental illness", I was shocked, it was the fucking drug, not mental illness. Over 2,800 cases of violence/death from SSRI's in the USA, not all documented. 66,300 deaths from SSRI's caused from drug induced volence in numerous countries. that is from CCHR stats and no doubt not all documented by far, or incidents like mine, the number would skyrocked even higher.

It wasn't until 1996, when I was referred erroneously to a psychiatrist in private practice, but on staff at the Mt. Sinai Hospital, ( again one of the worse mistakes of my life agreeing to go), CNS/Sensory overload problems inherit with ME/CFS that psychiatric drugging started again with years of adverse drug reactions, repeatedly misdiagnosed until repeatedly brain and body damaged. At first the neurological aspects were being focused upon, sent to a neurologist at the Mt. Sinai Hospital, the psychiatrist thinking temporal lobe epilepsy, telling me my ME/CFS was psychiatric and I was lazy and didn't wan to work, it was really only depression. The Neurologist, when told I had ME/CFS, i was told 'I don't have time for such things get out of my office" in a standing pose. I was refusing to take antidepressants and said the doses where too high, and because of the prior incidents. This was a female psychiatrist who said the PROZAC reaction was HYSTERIA, the LUVOX, the violent thoughts I had "WERE JUST THOUGHTS'. After several months she convinced me to go to the Mt. Sinai hospital again to the 9th floor Ward, a lock in, if voluntary you could come and go when you wanted for the most part, this was just for an interview, to have them admit me to get me on the antidepressants. I was refused, saying I was not suicidal.

Shortly after Zoloft came out at 25mg dosages instead of only the 50mg it had prior, and started down years of psychiatric drugging with a list of adverse reactions, many severe. In 2002 I voluntarily admitted myself I had gotten suicidal on Celexa, gone hypo-manic, and also life stressors, being ill so long, a corrupt landlord, barely able to run a tenants association. I was admitted to the same 9th floor ward at MT. Sinai Hospital I had been on in 1996 and refused help. Another huge mistake admitting myself anywhere. I was misdiagnosed again, the years of adverse reactions ignored or that I belonged to a sub-group of ME/CFS/FM survivors that are dose sensitive or intolerant to antidepressants as well as other medications depending on the individual. They again ignored me when I said I kept feeling something going off in my brain and the severe adverse reactions. I was told I was told "you are overly concerned with reactions to medications', the discrmination regarding ME/CFS was extreme,

I was misdiagnosed bipolar, sent to a pharmaceutical expert at the Western, who asked me hardly any questions about my adverse drug reaction history or my ME/CFS. The drugs given for the next three months, lithium, Lamictal, Valproic Acid, Tegretol, damaged every muscle and ligament in by body, my speech, ability to process information. It was kept off my medical records wheel chaired up to the psychiatrist at the Toronto East General Hosptial for near 3 months in a wheelchair pushed by volunteers, also left off the records and damaged 2 more times. He and my GP, all of them refused to hospitalize me including Sunnybrook where I was first taken (happened another 4 times there and abused badly) They had added psychiatric to my medical files, suicides were added, I have never actually done the act of trying to kill myself, ie. attempted suicide. The incident with the gun, I chose NOT to buy bullets and went to ER instead - ignored. Years of major depression on the drugs, and severe suicidal idealization caused from them were ignored.

A few years ago I came across a site called www.ssristories.com , I posted it on C2NN. With all the violence and murders happening related to antidepessants, particularily SSRI's, I began to have some understand of what happened. However, it wasn't until I saw the 1991 Prozac Hearings that it gave me enough courage to speak out myself openly, I had told people I knew.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

This is a short introduction of psychiatric madness, including my own to put my faith in these people, who clearly do not know what they are doing or the drugs that do so much damage, mentally, and physically from big pharma they are pushing to support their falliable DSM. Lives ruined. The amount of permanent physical damage and neurological caused from these drugs is enormous and posts relating to same are forthcoming

Phone Call College Physicians Surgeons-Can't make them do anythingCosts Getting Medical Files, Disability Papers Signed, Medications when housebound,

what this means, doctors hosptials may not release your files if harmful to you? OR, harmful to a 3rd party, as in another doctor, hosptial. Therefore, as in my case, you get caught in a catch 22, no doctor will release any records that incriminate another doctor. Mine are so falsified and so much collusion, the hosptials and doctors, 6 involved hosptials alone. Many release forms not consented including the access center that coordinates your so called care, who were in collusion as well. Look at the costs below, do you think that is reasonable charges? I don't think so,far from it.

Who gets paid $160.00 clerical, for xeroxing 10 pages, just to start and send to you. Anyone else, I dont' think so.

How to register complaints, re collusion, damage, etc. other than type/hand written form. Complaints are kept in secret. See First Do No Harm post here and watch the documentary. No law firm, not enough money, you're out of luck.

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Associated Costs Getting Medical Files, many falsified, some misconstrued - amount of pages per hospital? ALSO NO DOCTORS NOTES GET INCLUDED

http://www.mtsinai.on.ca/HealthRecords/fees.htm

Basic Search Fee (Insurance and Lawyers)

* 10 pages or less
* over 10 pages

================

* $160 ($149.53 + 7% GST)
* $2 per additional page

Basic Search Fee (Patients)

* 10 pages or less
* over 10 pages
*=========================

* $160 ($149.53 + 7% GST)
* $1 per additional page

______________________________________________________________________________
_estern,Toronto University Net_ork of hosptials

http://www.uhn.ca/Patients_&_Visitors/your_health_record/index.asp

Patients $50.00 for first 10 pages, $0.50 per page over 10
pages
------------
Law Firms
Insurance Companies
Toronto Transit Commission
Community Legal Services
Criminal Injuries Compensation
Injured Workers Consultants
Benefits Disability Plan (US residents)
WSIB (Appeal Tribunal)
$160.00 for first 10 pages; $1.00 per page over 10
pages



_______________________________________________________

Toronto East General Hosptial

http://www.tegh.on.ca/bins/content_page.asp?cid=2-27-30

You must request this in writing by completing the Consent for Disclosure of Health Information form (available at the hospital). The completed form (with an applicable fee) must be signed, dated, witnessed and mailed to:

Toronto East General Hospital (TEGH)
Health Record Services
825 Coxwell Avenue
Toronto, Ontario
M4C 3E7
Phone: (416) 469-6821
Fax: (416) 469-6274

REQUESTOR / REQUEST TYPE FEE

*
Insurance
*
Law Firms
*
TTC
*
Community Legal Services
*
Rehabilitation Agency

$175.00 for first 10 pages; $1.00 / page after that

Criminal Injuries Compensation Board
Criminal Injuries Compensation Board


$175.00 for first 10 pages; $1.00 / page after that

Patient/Family Personal Use

$175.00 for first 10 pages; $1.00 / page after that

_______________________________________________________________

http://www.sunnybrook.ca/content/?page=Care_Stay_Priv_HR

How do I obtain a copy of my health records?

Information is released only as authorized by the patient, legal representative or as authorized by law. If you were ever a patient at Sunnybrook Health Sciences Centre, you can direct us to send copies of your health record by submitting a written request to the Health Data Resources Department where you were treated (including Holland Orthopaedic & Arthritic Centre, Sunnybrook campus or the Odette Cancer Centre).

How do I direct my request for information from my health record?

A written request, including the original signature of the patient or legal representative of the patient (e.g. in the event of a minor) is required if you want us to release your records. This would apply if you are asking for access to and/or copies of your own record (for personal use), or if you are asking for your records to be released to another health care provider, insurance company, or other individual of your choice. The written request must include the patient's name, patient's date of birth, hospital file number (if known), mailing address of where the information is to be sent, the purpose of the request and what information is to be sent. The request must be dated, signed by the patient or substitute decision maker (proof required) and witnessed. The request must be dated within 90 days of our receiving it.

Sunnybrook Campus
Health Data Resources
Room E123
2075 Bayview Avenue
Toronto, Ontario M4N 3M5
Phone: 416.480.4433



Women's College Hospital
Health Data Resources
Room A134
76 Grenville Street
Toronto, Ontario M5S 1B2
Phone: 416.323.6098

RATES NOT LISTED

Privacy Office

privacy@sunnybrook.ca
Phone: (416) 480-6100 ext. 1236
All inquiries will be kept strictly confidential

____________________________________________________________________________


http://www.tsh.to/contact.aspx

toronto scarborough hosptial

Health Records 416.495.2438

General Campus Departments Extensions
(first dial 416.431.8200)

Nuclear Medicine 8106

___________________________________________________________________________

http://www.stmichaelshospital.com/patients/fcn.php

Main Hospital Line 416-360-4000

Medical Imaging 416-864-5656

Patient Privacy

We take steps to protect your personal information from theft, loss and unauthorized access, copying, modification, use, disclosure and disposal. We conduct audits and complete investigations to monitor and manage our privacy compliance.

We take steps to ensure that everyone who performs services for the Hospital protects your privacy and only uses your personal information for the purposes with which you have consented.
The Collection of Personal Health Information

Protecting patient privacy is not only the law but an essential part of St. Michael's Hospital's commitment to treating our patients with dignity, compassion and social responsibility. Protecting your personal health information is about quality of care and treating others the way we want to be treated.

At St. Michael's Hospital, we collect personal health information about you directly from you or from the person acting on your behalf. The personal health information that we collect may include, for example, your name, date of birth, address, health history, records of your visits to St. Michael's Hospital and the care that you received during those visits. Occasionally, we may collect personal health information from other sources if we have obtained consent or if the law permits.
Uses and Disclosures of Personal Health Information

St. Michael's Hospital may use and disclose your personal health information to:

* treat and care for you
* conduct risk management activities
* teach
* conduct research
* compile statistics
* comply with legal and regulatory requirements
* plan, administer and manage our internal operations
* get payment for your treatment and care from OHIP, WSIB, your private insurer or others
* conduct quality improvement activities such as sending patients satisfaction surveys
* culfill other purposes permitted or required by law

As well, we disclose your contact information to our Hospital Foundation, so that they may conduct fundraising to improve our health-care facilities, services and programs.
Your Information, Your Choice

You may access and correct your personal health records or withdraw your consent for some of the above uses and disclosures by contacting us (subject to legal exceptions, such as where disclosures are required by law)

COMPLAINTS PROCESS (TRIED BEFORE, USLESS PRIOR).

For more information or to raise a concern you have with our practices, contact the manager of information privacy and security at:

Privacy Office
St. Michael's Hospital
30 Bond Street
Toronto, Ontario
M5B 1W8, Canada
Phone: 416-864-6088
E-mail: privacy@smh.toronto.on.ca

PRIVACY COMMISSION – DID THAT BEFORE USELESS & DISCRIMINATED AGAINST DISABLED

You have the right to complain to the Information and Privacy Commissioner of Ontario if you think we have violated your rights.

The Commissioner can be reached at:

Information and Privacy Commissioner/Ontario
2 Bloor Street East, Suite 1400
Toronto, Ontario
M4W 1A8, Canada
Phone: 416-326-3333 or 1-800-387-0073
E-mail: info@ipc.on.ca
Website: http://www.ipc.on.ca/

CherylSpeaksOut Makes Front Page on C2NN

The blog was just opened to feel it out and not ready to "go" or the official website, which presently has been beyond my physical and mental/cognitive abilities, at great distress.

Only a few people were told, that it existed, and even fewer that I had opened it up. A well meaning and loving Gentleman, wanted to help and help get this out in the open, because the media won't touch stories or situations like mine, they are all scared of libel because the Canadian Medical Protection Assocation has so much power. That's right, you can say what you want about a politician, but being damaged and abused by doctors, healthcare staff, in hosptials is off limits, including in your own home by health care support workers.

Abuse in any form should never be kept quiet. The intimidation, harrasement, abuse has been extensive in my case, we are now worried about my mom who has been keeping me alive for several years as the services were cut off for numerous reasons, some quite horrendous, and needs help herself. We are concerned that what is being done to her, is because of me, or elder miscare by the hosptial, that was also involved in my situation.

So for some time I have been working on the 'about" section for myself. I have done several versions, and may post a shorter one here, and a longer one on the website, the formatting is harder for me on the website than blogger.

That will help answer alot of questions, that people have posted on C2NN (Care2 News Network). Please feel free to leave your comments on the blog itself.

Comments by Care2 members can be viewed here

We don't have much faith, that I will receive honest neurological and medical care here, with so many hosptials and doctors involved already - 6, some repeatedly. We were told to get me out of the country. I got too bad off after I came off the remaining drugs in 2004 and left seizing and convulsing every day, even more brain/body damage, and then cut off doctors medications after the privacy medical laws changed to non-privacy medical laws, and also I had been going for malpractice, and the seizures and daily convulsions never stablized 24/7, tests set up I could not get to even prior to the brain damage my ME/CFS/FM has always been quite severe, and letters attesting to that, and worse afer ignored. So the tests looked good om paper like I wasn't complying, many of tests I really needed weren't even listed.

Unforuntately I do need some medication, to stop the dykesnia/ dystonia/convulsions, as well as have them stablized, the damage properly diagnosed and put on my medical records and the extensive pyshio I have been denied at a pace I can handle, physcial, cognitive, speech, and my medical records cleaned up. My mental processing capbilities have deterioated since the first brain damage. Proper care, and cognitive training, the daily convulsins stopped, and tramua of it all, would help tremdously as well as, having all the government and disbility forms filled in properly. They are up every year, and if they are not signed I GET CUT OFF, I can not get to a doctor I am too bad off, they don't wnat to touch me because of my medical files and obvious so much damage done. I also don't want any more of them falsified. some are up for signing for 5 years to life and want access to my medical records.

So here we are, I was going to close it again until it's ready to go, I am going to leave it open, and keep working on the 'about' short timeline, and get a petition going, I also need more documentation up which is difficult on the other site.

This can get things going, once I post the about, and a longer version on the website, I will start the petition, or perhaps sooner. We are at a loss who to contact, we have been to everyone and the former Minister of Health repeatedly, all government contacts with defeafening silence or heartbreaking results = nothing happened.

Blessings

70
Cheryl Speaks Out
Health & Wellness (tags: prozac, Psychiatrists, psychiatric medications, risks, research, prevention, investigation, Canada, science, safety, medicine ) submitted by--> Gregory - 4 days ago - cherylspeaksout.blogspot.com
What really happened,the continuing struggle to have honest neurological & medical care which I have been repeatedly denied since 2003, 2004, 2005 & 2008 in a leading edge facility that can address my illnesses, functioning levels, repeated brain,body

Nov. 2003, Dr. Saul Ltr - ME/CFS/FM, Functioning Levels -Repeated Body damage, Dyskinesia from adverse drug reactions NO DIAGNOIS

This letter is the only letter that refers to my body being repeatedly damaged from a doctor. 'brain damage" is consistently left off. I have a few others that make small mention of dyskensia, seizures, dystonia, but no proper diagnosis and repeatedly left off my disability insurance forms and other government forms as well as supportive housing wheelchair accessable.

The first one in January 2003, (Lamitical, Lithium,Gabipentin) misdiagnosed by a psychatrist at the Western as biplor at almost 50 years old & 10 years worth of adverse drug reactions to antidepressants totally ignored, the Lamitical cocktail damaged every muscle and ligament in my body, short, stiff and weakened. I had been unconcious on the couch for 2 hours, Sunnybrook Hosptial refused to hosptialize me. Then the opposite, my arms froze in the air, the GP refused to hosptialize me and begged me not to go to ER saying they would damage me more.

There was another in Feb. 2003 not on any records (Valproic Acid, Lithium, Gabpentin, the last 2 has been reduced because I was still stiff and was being wheelchaired up to a psychatrist at the Toronto East General Hosptial, for near 3 months, who refused repeatedly to hosptialize me) . In days, I my whole body slipped off the couch in a ackward position and paralized, the clock behind me, my eyes paralized open. Prior, I didn't know why I was in a room, putting knives in the freezer, and freezer items in drawers.

The picture is what Acute Dystonia looks like which I have little doubt is what happened in March 2003 and lasted for 2 weeks (Tegretol, Lithium, I had been told to discontinue the Gabipentin, the Lithium still lowered, he figured one of them was causing the 'stiffness" no questions were ever asked as to what happened, I was told 'it would go away" , life threatening adverse reactions were not reported, he didn't want to know about them what happeed). Within several days it started one morning, I had taken very small doses, my body arched backwards like a bow, like the picture above, then the trunk of my body pounding on the floor, up in the air and slamming down again, for 5 minutes at a time, and seizing and dazing out inbetween.

They almost had to axe the door down, I had called 911 but the phone went flying as I hit the floor and couldn't talk, the Superinetendant let them in. It took well over a hour or more before they could even get me on the gurney, the Supervisors stayed in the bedroom and trainees where going back and forth asking questions while this was happening, it was extreme, I could have had cardiac arrest. I recall one asking if I was having a panic attack for god's sake. They has promised me an ambulance home when they saw my wheelchair(s), which the ER doctor later refused, I had been taken to St. Michaels Hosptial. It continued for the rest of the day, the abuse started in the hosptial as soon as the paramedics left me alone, the trunk of my body still slammng up and down on the gurney, and seizing and dazing out inbetween unable to speak. It continued until the evening. I was told as was my Power of Attnorey that I was going to be hosptialized, once she left and the seizures and convulsions had stablized enough being on sailine all day, I was kicked out. It took a hosptial social worker to convince him, that I needed help dressing and a wheelchair. I was pushed in one to the doors and refused the ambulance home.

St. Michaels was the first time I was abused in a hosptial and not beleiving I needed a wheelchair to get home or that I couldn't push a manual one. I can walk, not much and not far. I need help changing my clothes most often, for along time and still, I have to have help. That day I couldn't walk, I was dragged up to my home, leaning me against the wall, one of my arms around his neck, by a Beck taxi driver after being kicked out of the hosptial after hours my body pounding on the floor and gurney, and seizing dazing out inbetween for the whole day. He got my keys from my bag, opened my door and layed me down on the couch, stayed a few minutes make sure I was ok, left his card and name and left. He was stunned what had been done, me I was in some kind of shock.

The dyksensia/dystonia convulsions and seizures, there is a difference, often hard to tell apart, started again the next day and lasted for 2 weeks on and off. I had been told to get off the bipolar medication and had gone on medication prescribed by my then GP, celexa which did more damage throughout the year, however, within 2 weeks, it with the Imovane stopped the convulsions and seizures, softened my stiff muscles and liagments abit. We tried to get a nurse in for help also as a witness for 3-4 weeks and were refused by the Access Center, they said it had to be the psychatirst from the Toronto East General Hosptial. He would only send in a nurse for 3 days, she came 1 day for about 15-20 minutes, wrote down my medications (we argued as I wasn't on the bipolar medications any more and she still wanted to write them down - she wrote down those as well asthose that my GP was giving me) , took my blood pressure, I had 2 dyskensia/dystonia convulsions, one on the couch, one the floor when she was walking out by the door. She looked down at me on the floor and said 'that is a weird kind of dyskesnia you have" and walked out and slammed the door,

The records state she was here 2 times, I had kept calling asking where she was. The EYAC Report also says J. Prince states I was having "purposely controlled movements". The dyskensia/dystonia convulstions and seizures continued for 2 weeks as mentioned. 911 was called again by homecare, I had gone under the tub in the water seizing while she was bathing me. Parameditcs arrived saying they were going to take me to the same hosptial, I refused.

I found out recently that Imovane isn't suppoed to be mixed with strong seizure medications. I had problems with it and gabepentin mixed together in 1996.

That I had 2 more serious drug reactions causing bodly harm, and permanent damage, let alone the first one, was not on records. Nor was the fact that I was wheelchaired up to this psychatrist at the Toronto East General Hosptial, for near 3 months who consistently refused to hosptilize me as did all those involved. Sunnybrook, the Western as well, I had called repeatedly for help saying "I am still stiff", and was told 'they would stand behind their decision, to stop calling and not call back" "and hung up the phone on me.

I had demanded I be hosptialize repeatedly by the pshycatrist at the Toronto East General Hosptial, his response on the records I have gotten state" not traditional to hosptialize patients for change of medication', that was just prior to the tegretol. They didn't want me in a hosptial, the damage was so severe it would be recorded. This became recurrent theme as well at every hosptial and doctor, neurlogist involved, along with the abuse.

I have not been able to get my medical records being left like this, I know they are badly falsified, as well as finacially with 6 hosptials involved as well as several doctors the cost will be extensive and for mostly frauded files. They are badly falsified from what little I know already from what was done to me in hosptials, what I was asked by other doctors or told, as well as documentation I have, and more confirmed after near a 3 year fight to get mine from the Access Center with some missing and missing requested information as whom they had given them out to as 2 illegal consent forms had been signed by them I was entitled to my files when I first asked for them in 2003.

The services it states I was getting in the letter were cut off long ago. My mom has been keeping me alive since, and even prior with life need services I needed and was denied, stating Access Centers didn't provide them, some they were cutting me off that others got. After having to go to food banks prior when ablee, I was now told to buy my food off the computer from 'grocery gateway". Well then if you can't shop, lift, meal prep, cook, get cash, clothes, who does. I found Everett on the internet and he came and fought for rights for homecare to grocery shop and 'lift grocery items".

During this time I was being abused by homecare staff as well, being left in my own mess in bed, often unable to move and bed confined, bedpan put up in closet where I couldn't reach it. Threatened that if I said anything they would report me and I would be cut off services, while they watched soap opera's, had 20 minute lunches, and left me and my home filthy, 4 baths in 6 months, 2 bedbaths, one I got because my homecare went on vacation. My wheelchair held at the end of the hall and told I had to walk to get to it, I was unable to at the time, my calf muscles were almost gone. Also stolen cash, clothes, my personal files gone through. When I did complain, I was told to "stop bad mouthing the homecare" by the Access Center. A COTA worker said "well then you have a problem don't you"

There is NO DIAGNOSIS FOR THE REPEATED BRAIN AND BODY DAMAGE ON HERE, Tardive Dyskinesia was not the diagnosis. I did get that, it started in my right facial cheek as a 'twitch" and spread to my whole facial cheek, hands, feet and neck, in that order> It is then called progressive dyskinesia or dystonia. The muscles around my mouth were so damaged I could not hold food in, very little at a time, it would dribble out the sides of my mouth on me and the floor. They started to impove by May 2003, but still took time and are still damaged, every muscle and liagement in my body is damaged. I am unable to lift much, or walk much & it sets the dystonia/movement disorders off, sometimes I am unable to walk at all. I force myself in apartment so I don't loosing my calf muscles which has happened repeatedly.

In July 2003 another horrific event of adverse reactions and abuse, quite severe at Sunnybrook hosptial, I will post that after, I am wondering if I can upload a PDF here.

I had been refused to be hospitalized at every turn up until this point in time, they all did except for 1 in 2004, that was responsible for most of the damage and the collusion, positive test disappearing, others changed, abused there as well and not the nerological hosptial here. The abuse started in hosptials after the first brain damage, severe, verbal and physical. So I started going for malpractice, and I was purposely isolated even more. I have letters attesting to that as well.

What did happen during this time and throughout to 2005 especially is horrific, and involves 6 hosptials, most involved in the collusion, abused verbally and or physcially in every one of them, some repeatedly, my mom in two.

I need proper diagnosis, many tests, the damage is complicated and extensive, plus my illnesses are severe. The convulsions,d ysotina, dyskensia from needs to be stablized, so I need some medications with my adverse drug reactions on medical files first so they don't damage me more.

I am terrified of being hostplized, but need the damage sorted out, I need some medications which is frightening, and the dyskensia/dystonia, movement disorders, seizures stablized as much as possible with as little medication as possible and the support and care I am entitled to in Canada.

I need it on my medical records, disability papers, government papers. I have been left like this so long, they are pushing that the longer I am like this the harder it is to believe. One doctor instigating alot of abuse verbally and phsycially said "she must have always been like this".

Dyskensia,, Dystonia, parkinsonim from brain damage from antidepressants

Tardive Dyskensia, dystonia, drug induced Parkinsonium from antidepressants causing brain damage