Homecare Support -Housing Application CFS/FM only No Brain/Body Damage Or Support Care Housing

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SUPPORT SERVICES/SPECIAL NEEDS
Main Contact: CHERYL BENSON App No.
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SUPPORT SERVICES
Member Name Reason for Support Services
BENSON, CHERYL Disabled - Attendant Care
BENSON, CHERYL DEPRESSION, CHRONIC FATIGUE SYNDROME/FIBROMYALGIA AND HAS HOMEMAKER COME IN AND C.O.T.A. PROG: LOWW LEVEL OF FUNCTIONING IS PERMANENT. W/C PART-TIME
SPECIAL NEEDS
Member Name Reason for Special Needs
BENSON, CHERYL Physically Disabled
BENSON, CHERYL Physically Disabled - Wheelchair
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I was supposed to get supportive care wheelchair accessable housing, I found out it's possibly  not supportive care, Dr. Saul frauded the letter not putting any physical damage - housing told me to get a lawyer - and the doctor seeing me in-home that was involved refused to do an application in 2004 citing the psychical damage , dystonia, seizures, as "faking it" "episodes" "psychological" "10% in my brain the rest psychological". Although many others did to try to get me bumped up on the top of the list i. On another form, for revenue canada Dr. Saul says only CFS/FM, on another form dystonia and need 2-8 hours day supportive care, on another dyskensia. Every form has been frauded by the doctors involved.

I was just there to change some information for housing, I have been on the list for 10 years now. I am livid, the damage is not on there, and is extensive, movement disorders, dystonia on medical records back to 2003, every muscle ligament in my body is damaged, my left side drags around on and off, I can barely lift anything only very light things, change my clothes, bath myself, lift or move hardly anything and mostly bed confined. The extensive damage is no where to be found except the one letter Dr. Saul did, when I was going for malpractice just before I came off the remaining drugs that were doing more damage and all hell broke loose and some mention on COTA workers letters. They have affected my life and well being, and all medical and government records on every level. My ME/CFS, FM, MCS, EBV, was severe enough I didn't think I would live through that.


That the government allows this is clearly apparent how much doctors and hosptials are above the rule of law here.


I also don't have homemaker supplied by government paid for by our taxes. The access center was severely discriminatory regarding ME/CFS/FM and HepC, they were clearly in the dark and wished to remain so. They claim and everyone they hired that they were totally unaware of how physically damaged I was, and eventually  as I continued to worsen.

The EYACenter was involved in the collusion after I was brain damaged with one of the hosptials, several doctors involved. In 2004 when I was cut off doctors and any medications and left here, and COTA workers. I had been left to seizure, cramp, paralyzes the later from dystonia day after day, into months into years, some I manged to get under control without the proper medications, I was left purposely incapacitated, as at the end of 2003-2004 I had started (1) an investigation into the Access Center - by the wrong people, - the Ministry of health who they come under, it's like asking the police to investigate and charge each others (2) I had started malpractice and negligence and had gotten a certificate, although I had to be financed - I had asked 3 doctors and 4 hospitals for help by end of 2003, and only got abuse, before I even considered malpractice and negligence. Everyone makes mistakes, deliberately helping someone after they have been so horrifically damaged physically, repeatedly and instead refusing to hospitalize then and abuse instigated in hospitals so it was clear not to call 911 or more. Home-care were not doing their job and often abusing me, left in my own mess in bed, bed pan put in closet top shelves where I couldn't reach them, theft and more. The Access Center once again covered for the homecare instead of taking responsibility for my care  quote "stop bad mouthing the homecare". 


In 2004 they were forced to change to a prior agency VHA, I had my original services from for improved homecare and reporting, however my falsified records were forwarded, it seems to everyone, and when reporting they never appreciated any caregiver being reported that wasn't doing their job properly. In 2005 after being abused and threatened by yet another caregiver who was caught going through my medical records, I had been paralized in bed from dystonia,  I shut off services temporarily. In turn, the EYACenter shut them off permanently.

Since 2005 my mother has been keeping me alive and failing herself, and ever prior had to do most of their job, which she was not up to and has paid dearly for physically and taken years off her life.

I was shocked to read the records late 2008 finally, how much information they were keeping on me without written consent by me, they signed the consent forms when the non-privacy laws came into effect, which is fraud. Barely one page is correct through over 100 pages and more of information recorded, also the incompetency, discrimination, stupidity, meanness, and collusion. It is hard to tell when one is not the other, they overlap so much.

During 1996 to about 2000, I was allowed homcare 2 hours a week because of my ME/CFS, FM, HepC, MCS, I also have EBV. My ME/CFS has always been severe. This was for doing housework, cleaning, dishes, laundry, and a COTA worker supposedly to help me with my cognitive problems, pacing myself so I wouldn't 'crash' as much, that's ending in bed for days weeks or months from going to the corner store, walking to fast for short distance, any activity, and also with household management. The COTA worker did none.

I was told I was cut off homecare services around 2000, because of lack of funding by the Ministry of Health. I did get them back in 2003 when I was brain damaged the first time, they show clearly that none of them or the people they hired knew how damaged I was, how could they not.


When I got the East York Access Center reports that took me from 2003 - 2006 to get, which was illegal on their part, and barely one page is correct. It states I was let go in 2000 because "client doesn't require hands on care". My homecare worker, who was one of if not the greatest I had and was from India and near 65 years old, often offered to help change my clothes or to give me a bath as she saw I was unable to for days, weeks at a time, sometimes, several months when I had a severe set back. They never knew. They never cared. In fact it got worse after the first brain damage and is another chapter to be written somewhere else. The closing of my files with the East York Accedes Center and the Toronto General Hospital was April 2006, saying I was still being followed by psychiatry there and was a main hospital involved in the collusion - I had left psychatry in March 2003, after the last bipolar round with tegretol cocktail caused acute dystonia with seizures and full body movement disorders that never went away - the nurse brought in house said "was a weird kind of dyskenisa" put down on the records as" muscles spasms and purposely control movement"