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~ We are still hopeful a Sponsor comes forward for :
a hospital advanced expertise in ME/CFS, HepC and extensive neurological damage from prescribed medications, generalized dystonia, seizures, movement disorders, 2 strokes and the extensive muscle ligament damage. Also need to be admitted for a period of time for extensive diagnostic testing, treatment, getting the dystonia's stabilized, movement disorders and damage mitigated, which is not being allowed and low functioning levels repeatedly not taken into consideration from discrimination regarding ME/CFS/FM, and since the brain damage, I am unable to make appointments, and as much as possible needs to be done in hosptail per stay periods.
As well the extensive list of adverse drug reactions put on my medical files ASAP which should have been done years ago and repeatedly refused. I am mostly bed/houseconfined documentation goes back for near 2 decades.
The damage is extensive and very complicated. Anyone else with Brain Injuries and extensive physcial damage gets top extensive neurological diagnostics, treatment facility, care and extensive recovery programs at paces they can handle as well as support for family members. I have received none.
The amount of tests that are needed, illnesses and complicated damage and with limited functioning level, very sensitive to medications, as much as possible needs to be done while admitted in hospital that can accommodate most, if not all of the honest testing, diagnosis. Treatments, care and on my way to the best recovery possible and eventually the extensive physiotherapy, speech, cognitive, I have been denied for years when I have improved enough, my illnesses and damage and healing, setting the pace.
Transportation & care provider or nurse to accompany. I am unable to bath myself, change my clothes or prepare my own food. I can walk but not much. Myocolonic dystonia convulsions, movement disorders , have to be stabilized long enough for transportation, and hopefully the generalized dystonia is not in a flare progressing to full body paralysis as of October 2010 (my power wheelchair comes with me), and need proper medications and treatments, diagnosis for movement disorder and stop the now daily paralysis. I
I have been repeatedly cut off all medications, and the myocolonic convulsions, spamoidic generalized dystonia never stabilized 24/7 , my shoulder sockets/ligaments are badly damaged from convulsing every day, as well as the left side of my body is weak & drags around, my left jaw dislocates, my teeth damaged from the dystonia. Cognitive, speech, physio therapy is needed, and regular medications including for lungs, pain, and immune therapy for the ME/CFS and Hepatitis C, as well as others are needed.
I need a in-house doctor immediately that is familiar with ME/CFS and my low functioning levels so the cycle of discrimination stops.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~ Petitions will be set up to try yet again to get the extensive neurological medical care I have been denied, and email campaign, although all politicians and others have been written to for years, as well as media,, advocates and activists. We have little faith in a Petition after everything that has already been done to no avail with government. When Petitions and lettersare posted please forward widely. The main website hopefully will be done early 2011, I worsend so badly, it repeatedly had to be put aside.
~ Human & Patient Rights Lawyers, Canadian, USA, Worldwide Advocate Groups, Individuals please take a stand and show or add your name/support and those that can please help
please contact : publicappealforcheryl@gmail.com
My continuing struggle to have honest & extensive neurological medical care with no abuse, discrimination,or intimidation which I have been repeatedly denied since 2003 to 2017 in a leading edge facility that can address my illnesses, functioning levels- Myalgic Encephalomyelitis (M.E), Fibromyalgia (FM), Hep C, And repeated brain & strokes (3) ;;and extensive muscle ligament damage, Myoclonus/ Generalized Dystonia, seizures,from 8 years of psychiatric drugging
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cherylbenson
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Overview and Summaries of What Happened
START HERE FIRST:
Short Overview & Your Help Please
Summary Part One
Summary Part Two
Short Overview & Your Help Please
Summary Part One
Summary Part Two
~ my Blog Profile
The Summaries are quite short, and often need updating the more medical records I get in. The full story can fill a book.
I need a webmaster that can do everything, except put in the type, and puts in themes and widgets that work together, to my specificiations, and not crash the site.
http://cherylbenson.ca
I am left to fight off full body paralysis daily, and partial since 2004 and in for the fight of my life ... at least to extend it and down to the crunch now.
I may go with this blog and a more simplified version http://savingcheryl.blogspot.com I am unable to type often and need help - I would rather it be on the website more simplified .. and letter form page for people to send .......to MPP's, MPP, Ministry of health although they were invovled prior and refused hosptialization in 2005...
you can contact me @ publicappealforcheryl@gmail.com
thank you
The Summaries are quite short, and often need updating the more medical records I get in. The full story can fill a book.
I need a webmaster that can do everything, except put in the type, and puts in themes and widgets that work together, to my specificiations, and not crash the site.
http://cherylbenson.ca
I am left to fight off full body paralysis daily, and partial since 2004 and in for the fight of my life ... at least to extend it and down to the crunch now.
I may go with this blog and a more simplified version http://savingcheryl.blogspot.com I am unable to type often and need help - I would rather it be on the website more simplified .. and letter form page for people to send .......to MPP's, MPP, Ministry of health although they were invovled prior and refused hosptialization in 2005...
you can contact me @ publicappealforcheryl@gmail.com
thank you
Please Help Support Cheryls Right to Extensive Neurlogical Medical Care and Human Rights
HOW YOU CAN HELP CHERYL
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~ We are still hopeful a Sponsor comes forward for :
a hospital advanced expertise in ME/CFS, HepC and extensive neurological damage from prescribed medications, generalized dystonia, seizures, movement disorders, 2 strokes and the extensive muscle ligament damage. Also need to be admitted for a period of time for extensive diagnostic testing, treatment, getting the dystonia's stabilized, movement disorders and damage mitigated, which is not being allowed and low functioning levels repeatedly not taken into consideration from discrimination regarding ME/CFS/FM, and since the brain damage, I am unable to make appointments, and as much as possible needs to be done in hosptail per stay periods.
As well the extensive list of adverse drug reactions put on my medical files ASAP which should have been done years ago and repeatedly refused. I am mostly bed/houseconfined documentation goes back for near 2 decades.
The damage is extensive and very complicated. Anyone else with Brain Injuries and extensive physcial damage gets top extensive neurological diagnostics, treatment facility, care and extensive recovery programs at paces they can handle as well as support for family members. I have received none.
The amount of tests that are needed, illnesses and complicated damage and with limited functioning level, very sensitive to medications, as much as possible needs to be done while admitted in hospital that can accommodate most, if not all of the honest testing, diagnosis. Treatments, care and on my way to the best recovery possible and eventually the extensive physiotherapy, speech, cognitive, I have been denied for years when I have improved enough, my illnesses and damage and healing, setting the pace.
Transportation & care provider or nurse to accompany. I am unable to bath myself, change my clothes or prepare my own food. I can walk but not much. Myocolonic dystonia convulsions, movement disorders , have to be stabilized long enough for transportation, and hopefully the generalized dystonia is not in a flare progressing to full body paralysis as of October 2010 (my power wheelchair comes with me), and need proper medications and treatments, diagnosis for movement disorder and stop the now daily paralysis. I
I have been repeatedly cut off all medications, and the myocolonic convulsions, spamoidic generalized dystonia never stabilized 24/7 , my shoulder sockets/ligaments are badly damaged from convulsing every day, as well as the left side of my body is weak & drags around, my left jaw dislocates, my teeth damaged from the dystonia. Cognitive, speech, physio therapy is needed, and regular medications including for lungs, pain, and immune therapy for the ME/CFS and Hepatitis C, as well as others are needed.
I need a in-house doctor immediately that is familiar with ME/CFS and my low functioning levels so the cycle of discrimination stops.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~ Petitions will be set up to try yet again to get the extensive neurological medical care I have been denied, and email campaign, although all politicians and others have been written to for years, as well as media,, advocates and activists. We have little faith in a Petition after everything that has already been done to no avail with government. When Petitions and lettersare posted please forward widely. The main website hopefully will be done early 2011, I worsend so badly, it repeatedly had to be put aside.
~ Human & Patient Rights Lawyers, Canadian, USA, Worldwide Advocate Groups, Individuals please take a stand and show or add your name/support and those that can please help
please contact : publicappealforcheryl@gmail.com
Cheryl's Related Sites
Documents Involved in my Case
Blog Archive
-
▼
2009
(33)
-
▼
September
(7)
- neck &legs give out today getting worse almost lan...
- apple not give onsite service said would when boug...
- neck giving out can't hold up landed on mac w/face...
- abit of improvement f/severe #MECFS crash, gets sc...
- Summary of What Happened - Part TWO
- 90-95% bedbound getting real close to moving puter...
- #ME/CFS #dystonia #ABI crash-tolerate lite & sound...
-
▼
September
(7)
Categories
- 1991 Prozac Hearings (1)
- 2003 April (4)
- 2003 Jan. (4)
- 2003 Nov. (1)
- 2008 Dec (1)
- 2008 Dec. (2)
- 2008 Nov (2)
- 2008 Sept. (1)
- 2009 (1)
- 2009 Jan. (2)
- 2009 Nov 4 Journals (1)
- 2009 Oct. (2)
- 2010 Dec. (1)
- ABI (3)
- ABOUT CHERYL - SUMMARY (1)
- Action Alerts (1)
- ADP (1)
- adverse drug effects (7)
- Alernative Health Products (3)
- American Psychiatric Association (1)
- antidepressants (3)
- Articles 2009 (3)
- blogging (1)
- brain body damage (5)
- brain damage (2)
- Canadian ME/CFS Clinical Definition (2)
- Canadian Medical Laws (1)
- central nervous system damage (1)
- cervical dystonia (1)
- CFS/ME (3)
- Chronic Faituge Syndrome (1)
- chronic fatigue syndrome (5)
- Chronic Fatigue Syndrome Advisory Committee Meeting (CFSAC) - Day 1 (1)
- Chronic Fatigue Syndrome Advisory Committee Meeting (CFSAC) - Day 2 (1)
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- dyskensia (2)
- dystonia (9)
- Energy Index Score Tables (2)
- Exercise (1)
- EYAC (1)
- Falsified Information (1)
- FDA (2)
- feedburner (1)
- Fibromyalgia (4)
- Filing Complaints (1)
- FM (2)
- generalized dystonia (4)
- Gilderdale Case (2)
- Health Care Abuse (1)
- HepC (3)
- homecare (1)
- Housing Connections (1)
- Intimidation (1)
- Jan. 2010 (1)
- journals (3)
- Left Side Dragging (1)
- limb dystonia (1)
- Living Conditions (1)
- Mac (1)
- Malpractice (1)
- Malpractice- Collusion (1)
- Maps (1)
- me/cfs (9)
- ME/CFS/FM (5)
- Media Coverage (1)
- Medical Files- Obtaining (1)
- medical records (1)
- Meditation (1)
- MLV (1)
- movement disorders (2)
- Murine-leukemia virus (1)
- Myaglic Encelopmeytitis (1)
- myalgic encephalometitis (2)
- myalgic encephalomyelitis (5)
- myocolinic dystonia (5)
- Natcell (1)
- Negligence (1)
- neuroleptic malignant syndrome (2)
- NIH (1)
- oral tardive dyskenisa (1)
- Oslers Web (1)
- Outbreaks (1)
- Paitents Rights (1)
- paralysis (2)
- parkinsonium (1)
- parkisonium (3)
- Part TWO (1)
- PDF phamplets - ME/CFS/FM (1)
- Phone Calls (1)
- Photos (4)
- psycotropic drugging (2)
- saving cheryl (1)
- seizures (5)
- Short Overview and Help Please (1)
- SSRI's (1)
- Stemcell (1)
- stroke (1)
- The Whittemore Peterson Institute (1)
- Timeline (5)
- timeline-Jan-March 2003 (1)
- Toronto Western Hosptial (1)
- UK (1)
- Videos (26)
- Viral Testing (2)
- viruses (1)
- XMRV Retrovirus (4)
- XMRV Retrovirus Testing (1)
- XMRV Variants (1)
Add Your Name to Supporters
To add your site/organization please email publicappealforcheryl@gmail.com or if you have Cheryl's personal email, these will be added to the actual website as well which is in the process of being done and very slowly, and have no webmaster that willl build as needed to specifications. Thank you
Mobile Broadcast News
Triumph Over Hepatitis C
Sophia and M.E.
Dom's CFIDS & FM Site
Mobile Broadcast News
Triumph Over Hepatitis C
Sophia and M.E.
Dom's CFIDS & FM Site
http://standup2me.blogspot.com/
Worldwide Association for ME/CFS Awareness & Research WAMCARE
NOTE: Comments are Moderated due to spam.
Worldwide Association for ME/CFS Awareness & Research WAMCARE
NOTE: Comments are Moderated due to spam.
Followers
- A Hummingbirds' Guide to M.E.
- Antidepressant Facts - Adverse Reactions, Damage
- Dystonia Foundation.org
- Dystonia Support
- DystoniaCanada.org
- http://cfsknowledgecenter.ning.com
- http://fm-cfs.ca/home.html
- http://www.aboutmecfs.org
- http://www.antidepressantsfacts.com/
- http://www.blueribboncampaignforme.org/
- http://www.cfids-me.org/
- http://www.cfidsreport.com/index.htm
- http://www.cfsresearch.org/
- http://www.co-cure.org
- http://www.comingoff.com
- http://www.davidsbell.com/
- http://www.drmyhill.co.uk/articles.cfm?subject=Fatigue
- http://www.dystoniacanada.org/
- http://www.forums.aboutmecfs.org/
- http://www.hepatitis-central.com/
- http://www.hhs.gov/advcomcfs/
- http://www.investinme.org/index.html
- http://www.mecfsforums.com/index.php
- http://www.mefreeforall.org/
- http://www.nightingale.ca
- http://www.oslersweb.com/blog.htm
- http://www.pandoranet.info/
- http://www.prohealth.com/library/index.cfm
- http://www.thenhf.com/article.php?id=687
- http://www.wegohealth.com/
- Hunter Hopkins Center - Dr. Lapp ME/CFS
- International IACFS/ME
- John Breeding's Website - psychatric drugging
- List of ME/CFS sites, Doctors, Advocacy, Personal
- Lloyd Wright'sTruimph over Hepatits C - Alterantive Medicine
- ME/CFS Worldwide Patient Alliance
- Myalgic Encephalomyelitis Association of Ontario (MEAO)
- National Alliance for Myalgic Encephalomyelitis
- National Dysautonomia Research Foundation
- National ME/FM Action Network
- Patient Alliance for Neuroendocrineimmune Disorders Organization
- Psychiatric Drug Side Effects Search Engine
- SSRI Stories of Adverse Drug Reactions
- The Canadian Movement Disorder Group
- The Medical Research Council’s Secret Files on ME/CFS
- The Whittemore Peterson Institute for Neuro Immune Disease
- WeMove.org
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Provincial Medical Association & Ministers of Health are reponsbile for health care & laws. Cheryl has been refused honest extensive neurlogical/medical care at every turn in Ontario. Should Canada federally help and/or Sponsor Cheryl's Neurlogical Care
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Have you considered the posibility that you may have lyme Disease as so many of us with ME/CFS are being found to be sufferring from Lyme and with long term antibiotics are getting our health back. All your symptoms could be related. See
ReplyDeletehttp://www.canlyme.com/
lyme disease was ruleout to be diagnosised with ME in 1991 which a hord of other tests, my first post is being reworked. if u look at the title of blog, I have brain damage from prescribed meds and DYSTONIA, convulsions and spasmodic spreading through body and down spine started in march 2003 from pshcyatric drugs for neuro illness. every muscle ligament damage shoreted and stiff PIOR NTO ON records left here. i mostly bedconfined convusosing and paralizing all day, Ididn't think live though ME. i know some take small dose of antibiotice for other, not lyme, me/cfs related, i see on yahoo groups I subsrib. i took antiboitics and got worse.
ReplyDeletethx 4 posting, so others know, lyme has to be ruled out to be diagnoise with ME/cfs AS did a long list of other illnesses prior to the extensive brain and body damage
namaste